My daughter became disabled due to on and off malaria
By Kiyimba Bruno
Mrs Alessi Nesta is a lady based in Arua district. She represents the mothers of the persons with disabilities in Arua District. She says that her daughter became paralyzed due to the fact that she
had on and off malaria which they had under looked at first.
But however, things became worse. The 23 year old girl had her father die at the age of 3 years. Since then things did not turn out positively at first. But as time went on they realized she had to do something special to make her daughter live a healthy and p[positive life. They opted to start up a small group with 7 people who are now the living examples in the area that even the people with disability can do something.
With the National Union of disabled Persons of Uganda (NUDIPU), they have managed to think beyond the box. The major challenge she faces is that medicines are expensive and if someone gets a chance to get it from abroad, again the tax is too much for the patient. On this note, Hajj Bumali, the board director of the NUDIPU urged the government to allow tax exemption to the persons with disabilities.
Mrs Alesssi says that her daughter indeed was affected that even the pace of her understanding things is very low. She says that it is sad but true, her daughter started knowing how to write her names when she was in primary seven.
On a good note, she says that the doctors advised her that the girl must reach 30 years of age so as to be able to have strong blood that can help her fight the situation. Indeed she is now witnessing it since the 23 year old girl can now knit and have the money to pay tithe in the church where she prays from. She also says that the girl has completed studies in a technical school in Arua and is changing day by day. She urged the government to increase on the grant of money that they give to the persons with disabilities so as to enable them do more of what was not expected out of them. She urged parents to always take note of what kind of medicines that they are giving to their children.
Mr Amis Ayoma, the district local government officer at Arua district is happy with the NRM government which has just provided them with wheel chairs to assist the people with disability. All this was said during the 2016 annual general meeting of the persons with disabilities, the theme for the day was “A transformed NUDIPU in realizing the dignity of every person with disability in Uganda”.
Hajj Bumaali Mpindi on this occasion requested government to make clear follow ups of all people who construct roads, buildings and many more that such should have places for the persons with disabilities.